03 November, 2007

Jungle Party

Went to fantastic party for Leelo today at an oh-so-cool place for children to run amok. In our case Jake was not happy when we go there, eventually got okay, then LOST HIS SH*T when we sat down for pizza later. It was really very, very sad for me.

(some of the following is from an email I sent to a friend about the incident)


I don't think anyone at the party had ever seen Jake lose it in such a big way.. and we really should have skipped the whole sit down in a small room part, since he had only just gotten it together in the play area.

Surprisingly, after all these years, I still have embarrassment and resentment when he acts out.. see, even there I think of it as acting-out instead of part of a disability. I always think that since he can get it together he should be able to when I need him to. I actually told him he was "being rude." I guess we have pretty high expectations in some areas for Jake. Somehow it is okay (in my head) if he never does math, but he must be able to sit at the table with friends and family.

Clearly I am still trying to figure this whole "Mothering a Special Needs Child" thing.

We don't do a lot of things because we like to set Jake up for success..

and probably, more than that, we do not like to not feel like we did at the end of the party.
Related Posts Plugin for WordPress, Blogger...
all writing by me © 2004-14 (unless otherwise noted)
The opinions on this blog are my own, and in no way represent the many groups, foundations and communities with whom my name may be associated.