Showing posts with label autismcorps. Show all posts
Showing posts with label autismcorps. Show all posts

30 July, 2009

WunderSkool Here We Come!

Jake has been accepted into the program at WunderSkool! I know it may not truly be a panacea, but today it feels that way, and darn it, I am gonna take that feeling and savor it for at least a few days. We already have the transition meeting arranged.

and... there might be room for Lucy at the local awesome day school... what to call it? Maybe Woodstock? They will call me in the morning.

and...I found sweatpants at leTarget for Jake for to use as pajamas at camp.. he leaves *tomorrow* He is very excited.

and... no one is sick at my house

Howz 'bout in celebration y'all forward an email to every person you know and get them to sign that petition we've got going!

Ask Mrs. Obama to help form an Autism Corps. Please sign the petition http://tr.im/sa3y and while you're at it, join the Facebook group! http://tr.im/sbWD

Have a great day.... I am!

21 July, 2009

Christina Chew Posts on the Autism Corps

Kristina Chew has posted an article at Change.org where she shares our petition and how her own family would benefit from one-to-one care for their son Charlie.

I am without childcare this week. Jake's aide spent part of the weekend in the hospital with a high fever, victim of the flu (I wonder if she got her flu shot this year?) . She was tested for H1N1 and thankfully does not have it. But back to my point... I have no childcare this week, and I will be fine.

The reason it will be okay? I know it's only one week. My husband will take on a bit more of the evening routine, knowing that I will have a little less patience in me after competing the witching hour on my own. He will be kind when he is served the tuna noodle casserole I made yesterday. I can do anything for a week, possibly a year, but what if I felt the desperation of knowing that there was no one to help me...ever...

What if I was a single mom? What if I had more kids or more than one child with autism? What if I had to make a choice between spending money on childcare or feeding the child?

An Autism Corps could make a difference for families. It could change the life of adult autistics who just need a little (or a lot) of support. To gain a perspective we don't have, Shannon and I have been joined by Rachel Cohen-Rottenberg and Lindsey Nebeker, two adults on the autism spectrum to work on the Autism Corps strategy. This is important because many adults with autism do not feel represented in the current dialogue.

I am reminded daily by my son's pile of clothes and shoes that are too small, that he will grow to be a man, and that man will still have autism and will still need help. He will also, most likely, out-live me, leaving more than just a week without care.

Please sign our petition http://tr.im/rNdE

15 July, 2009

AND... patience wins again.

Bursting with happiness right now.

Happy little girls (Lucy and her friend Lil' Miss) destroying the living room and sending dollhouse contents across the hardwood floor.

Jake playing quietly in his room or in the backyard with his rocks and a tambourine.

and one phone call, one little call...

that let me know that Jake can be evaluated by the Amazing school!

Life is full of possibility again! He will visit the school two weeks from today to see if he s a good fit. Phew. I can breather again.

*************

and to top it all off, our petition was Site of the Day at Terri's Special Children blog at About.com

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